Okay everyone things are starting to look better and better with every hour that passes. I have been away from Puff all weekend but here is a quick update. The power of prayer is really showing through on my baby niece. yesterday she was completely weened off of the pain meds and was extubated in the early afternoon. she is making fast progress but we are not out of the woods yet. She still needs to undergo another MRI for a comparison to the MRI they took while she was being cooled and they have yet to be able to preform a spinal tap because they have not been able to get her into position. with all of that said. For the first time since she was born (128 hours) My brother and his wife have finally been able to not only change her diaper but they have gotten to hold her. I cannot even imagine how they feel now but i will quote my brother "Never been so excited to change a diaper, I'm sure it's going to lose its fun eventually." They are in good spirits but we still do not have a time frame for her homecoming (after all of this I am trading in the Padron 64's I had originally bought for her birth for a few Padron 80th anniversaries or if i can find them in town some OpusX for when she comes home LoL)
Thanks again guys. today they should be having a meeting with a neurologist to discuss some things. I am very optimistic. They said there was only one spot in the MRI that needs to be monitored but after the meeting they will know more. (the usual C.Y.A. of hospitals I am sure) but she is doing great. My brother kinda had a scare while holding her. I guess he accidentally pulled off a tube while holding her. It wasn't a big deal at all but I could only imagine how much it would have scared me if I was in his shoes.
"she is Rockin' her little bow today over her IV, hopefully the IV can be removed this afternoon after the lumbar puncture results come back. Shes a grumpy guss this morning but has taken well to her pacifier which calms her down quite quickly.
Neurologist finally met with us, what they do know as of right now is that there was a stroke in the rear left portion of the brain which will effect vision. This will effect her peripheral vision but it is possible other parts of the brain will help out as needed. It is still too early to tell what other kind of brain damage, if any has occurred. More MRIs as she gets older will give us a better idea.
Today she will start feeding via the orange tube into her stomach. As they wean off the Nasal CPAP/IMV she will be able to bottle feed and eventually feed naturally. We cant thank you all enough for all the love and support, please continue as Faye has several milestones to pass before she can go home with us."
This is all great news. I just cant say it enough, guys thanks for all of the prayers. she is a little trooper.
"Not a whole lot to report on, just waiting for them to wean her off the nasal CPAP over the next day or two. She is all swaddled up with her binkie, luvie toy and music box. Sometime today they will run an EEG to check her brain waves. She is feeding every three hours via a tube running down to her stomach. After the CPAP is removed she will begin bottle feeding.
Still waiting on a timeline from the doctors on when she gets to come home, Ashlea and I cant hardly wait until we can take her home with us. For now please keep up the support, thank you."
I was finally able to talk to my brother on the phone last night for about an hour. They are in good spirits and he says the hospital is amazing. Each baby has One nurse dedicated to only one baby at a time. "
As an extra little bonus because right now Jacob and his wife only have one vehicle because he laid down his Harley a couple months ago...
(a great BOTL) and I are going to get his bike up and running again for him so he will have transportation to work.